GSI Reiterates Need for Stronger Public Awareness to End Sickle Cell Cycle
By Admin, December 11
The Founder and President of the Gail Sickle Initiative (GSI), Oluwafemi Ajayi, has renewed the call for intensified public sensitisation on sickle cell prevention.
She made the appeal during the organisation’s Merit Award and Concert held in Lagos.
Ajayi underscored the importance of prioritising genotype compatibility before marriage, noting that many Nigerians still overlook this critical step due to religious beliefs that misleadingly suggest faith can alter genotype.
She clarified that individuals with sickle cell disorder can marry, but only if they choose to adopt children, stressing that neither religion nor affection changes genetic makeup.
She expressed concern about persistent stigma against sickle cell warriors, especially in workplaces, drawing from her own life experience with the disorder.
“I am concerned because I also have it and know what it feels like. I know the pain, the frustration, and Nigeria has the highest prevalence,” she said.
Ajayi appealed to employers to end discriminatory practices and urged the government to implement nationwide newborn screening to guarantee early diagnosis and better care for affected children. She encouraged people living with sickle cell disorder to stay confident and purposeful, reminding them that their lives hold value.
Highlighting the challenges facing the foundation, she identified limited funding and the need for stronger partnerships with government agencies and well-meaning Nigerians.
According to her, GSI offers wide-ranging support including research, hospital care, advocacy on genotype education, and public enlightenment — all of which require sustained financial backing.
Speaking on the theme “Finding Strength in Weakness (In the Case of Winning Warriors),” Pastor Sola Mabogunje urged those living with sickle cell disorder to remain resilient and to trust God through difficult moments.
He noted that people often feel overwhelmed when defined by their weaknesses, but faith provides strength and healing.
He also appealed for greater compassion and supportive environments for sickle cell warriors.
Other dignitaries at the event, including Mrs. Temitope Anola and Ladipo Oyewole, emphasised equity and inclusion in workplaces and called for an end to stigmatization.
The award and concert created a platform to discuss strategies to stop the sickle cell cycle, address discrimination, honour late warriors who contributed to advocacy and healthcare, raise funds, and bring hope to those still fighting.
It also doubled as a fundraiser to support the welfare of individuals living with sickle cell disorder.